Dementia Care

Holiday Tips for Your Loved One with Dementia -  Julia Nickrosz

The holidays are a time when we want to celebrate family, traditions, and the joy of being together. But when a loved one is living with dementia, the season can feel a little more complicated. While we still want to enjoy all the magic and warmth the holidays bring, it’s important to be mindful of our loved one’s needs and make adjustments to ensure they feel safe, comfortable, and included. Here are some ideas to help make the holidays a little smoother for both caregivers and those living with dementia.

 Create a Familiar and Comfortable Environment:

Familiarity is key. People with dementia tend to do best in their own homes, where they feel safe and comfortable. If it’s not possible for them to be at home, gatherings should be in a space as familiar as possible. This can help reduce anxiety and confusion.

Plan Small, Quiet Gatherings:

Large, noisy family gatherings can be overwhelming for someone with dementia. Instead, encourage family members to visit in smaller groups throughout the day. If you do decide to bring your loved one to a holiday event, try to keep the guest list small, and consider leaving earlier if they start to feel overstimulated.

Stick to Routine and Avoid Late Nights:

People with dementia, especially in the later stages, thrive on routine. Try to keep routines as consistent as possible. Keeping things predictable can help prevent confusion and stress. It’s also important to be mindful of timing—dementia can cause increased confusion and agitation later in the day. If possible, try to schedule holiday activities earlier in the day, when your loved one is most alert and comfortable, and avoid keeping them out too late.

Incorporate Quiet Breaks:

The holiday season can get loud and chaotic, so make sure to set aside time for quiet moments. If your loved one seems overwhelmed, gently guide them to a quieter space with less stimulation where they can visit with loved ones in a calmer environment. 

Reminisce and Connect Through Memory:

Long-term memories tend to remain intact. The older the memory, the more likely they are to remember it. Take advantage of this by talking about the "good old days." Reminisce about their favorite holiday traditions or ask about their childhood memories. This can be a wonderful way for them to connect with the present, even if they struggle with recent events. Avoid saying “Do you remember?” If they start to talk about a tradition you don’t remember or confabulate, that's okay. Meet them where they are in their reality.

Play Music They Enjoy:

Music has an incredible ability to reach people with dementia. The parts of the brain that process music are less affected by the disease than other areas of the brain. Music can help people with dementia feel connected, calm, and comfortable. Play familiar music, and if possible, let your loved one choose what they’d like to listen to (offer two choices). Avoid sources of music that may be interrupted by commercials, as it can break the flow.

Have a Backup Plan:

No matter how much we plan, sometimes things don’t go as expected. It’s important to have a backup plan in place, whether it’s a quiet space to retreat to or an early exit strategy if the event becomes overwhelming. Consider bringing an aide with you to the holiday gathering if your loved one may need to leave early, or if they require assistance with activities of daily living like using the bathroom. An aide can provide comfort and care, which may be less stressful for your loved one than relying on family members who are unfamiliar with their care needs. This can be a huge relief for family members as well, as caregiving can sometimes be overwhelming during busy holidays, without taking on unfamiliar tasks such as assisting with toileting. Keep in mind that your loved one can pick up on your stress, so having extra support and minimizing your stress can help you and your loved on enjoy the day to the fullest.

Get Them Involved in Simple Activities:

Even if someone with dementia can’t do everything they used to, find ways to involve them in simple tasks. Maybe they can help decorate the tree, set the table, or even husk the corn (my grandmother’s trademark way of helping, besides insisting on giving me a dollar at every toll booth!). It’s not about perfection—it’s about maintaining that Long-term memories tend to remain intact. The older the memory, the more likely they are to remember it. Take advantage of this by talking about the "good old days." Reminisce about their favorite holiday traditions or ask about their childhood memories. This can be a wonderful way for them to connect with the present, even if they struggle with recent events. Avoid saying “Do you remember?” If they start to talk about a tradition you don’t remember or confabulate, that's okay. Meet them where they are in their reality.

Don’t Forget About Safety:

Make sure their environment is safe. Look out for tripping hazards. A safe, well-organized space will help everyone relax and enjoy the moment without worry. If your loved one wanders, bring an aide with you.

These recommendations are meant as general guidelines to help navigate the holidays with a loved one who has dementia. However, it’s important to remember that every individual is different. You know your loved one best, so it’s crucial to pay attention to their cues and adjust accordingly. Adopt the recommendations that work for you, knowing that not all of them will apply in every situation. Ultimately, the goal is to make the holidays a time of connection, comfort, and care for everyone involved.

The holidays might look a little different when caring for someone with dementia, but that doesn’t mean they can’t be enjoyable and meaningful. By adjusting traditions, focusing on smaller, quieter moments, and remembering to stay patient and flexible, you can still create beautiful memories. And most importantly, take care of yourself as the caregiver. The holidays are about connection, and that includes taking care of your own well-being too. We wish you all a happy and peaceful holiday season.

Please know, if you would like to talk through your holiday plans, I am available. Sometimes talking things through can help when people are struggling to find the solutions that feel right to them with regards to how to include your loved one in holiday traditions.

 

Care Partner Coaching: Tailored Strategies for Families whose Loved Ones have Memory Impairment Disorders

In this month's blog feature, Dementia Specialist Julia Nickrosz, CDP,  shares her insights on navigating challenging transitions for individuals with dementia. Using personalized strategies grounded in Habilitation Therapy, she offers valuable guidance on how to support loved ones through difficult moves, manage behavioral changes, and create a more comfortable environment...

How Exercise Reduces Risk of Alzheimer’s Disease

Stanford Lifestyle Medicine

May 28, 2024/in Cognitive EnhancementMental HealthMovement & Exercise /

By Tanya Thakur, MBBS

Stanford physicians and researchers providing research-backed lifestyle recommendations across our seven pillars: Movement & Exercise, Healthful Nutrition, Restorative Sleep, Stress Management, Social Relationships, Gratitude & Reflection, and Cognitive Enhancement.

Website https://longevity.stanford.edu/lifestyle/

Alzheimer’s disease (AD) is one of the most devastating illnesses among older adults. The disease not only degrades memories but also affects one’s independence and takes a toll on family members.

AD is a progressive neurodegenerative disorder caused by the accumulation of abnormal misfolded protein deposits in the brain, including beta-amyloid plaques, tau tangles, and Hirano bodies. These deposits disrupt normal neuronal function, leading to the gradual loss of memory, cognitive skills, and, eventually, the ability to carry out daily activities.

AD is the most common cause of dementia, accounting for approximately 60 to 80 percent of cases. Presently, an estimated 6.7 million individuals in the U.S. have AD. In 2019, Alzheimer’s was ranked as the sixth leading cause of mortality among individuals aged 65 and above. Notably, between 2000 and 2019, while fatalities from stroke, heart disease, and HIV declined, deaths related to Alzheimer’s increased by more than 140 percent.

Even though scientists are working toward curing AD, we can take preventative measures by incorporating healthy habits, such as regular exercise, into our routine.

“It is a common misconception that we have minimal control over our risk of developing Alzheimer’s disease. However, nearly half of the Alzheimer’s cases could have been prevented or delayed by modifiable factors, including lifestyle changes,” says Sarita Khemani, MD, Clinical Associate Professor of Medicine and Neurosurgery Hospitalist at Stanford University. “Therefore, we should do everything in our power to incorporate healthy lifestyle habits as early as possible.”

The Link Between Exercise and Alzheimer’s Disease

There are many things we can do to reduce our risk of developing dementia. Several research studies have concluded that physical activity is one of the best ways to reduce risk significantly. For example, after analyzing 16 studies on exercise and dementia, the Alzheimer’s Society found that regular exercise reduces the risk of developing dementia by 28 percent and, specifically, AD by 45 percent.

The connection between the brain and aerobic exercise is likely due to neuroplasticity, which is the brain’s ability to adapt and form new neural connections or strengthen the existing ones. During aerobic exercise, our brain expresses cAMP response element binding (CREB) proteins that influence the transcription of synaptic genes, including those encoding for brain-derived neurotrophic factor (BDNF). BDNF supports neurogenesis (the formation of new neuron cells), neuroprotection, and angiogenesis (the formation of new blood vessels). BDNF also increases the volume of gray matter and the hippocampus (the site of memory in the brain).

Physical activity also serves as a potent modulator of other health risk factors, including hypertension, hypercholesterolemia, and insulin resistance, all of which increase the risk of developing dementia. Vascular damage caused by atherosclerosis can accelerate the cognitive decline associated with AD due to reduced blood and oxygen flow to the brain, leading to hypoxia of neural cells.

“Brain changes associated with Alzheimer’s begin approximately 20 years before symptoms appear,” says Dr. Khemani. “Exercise stands out as one of the most effective strategies for prevention, offering a low-cost, non-pharmacological, and low-risk option accessible to everyone.”

The Best Exercises to Prevent Alzheimer’s

While aerobic exercise increases BDNF levels, resistance exercises, such as lifting weights, are thought to have a greater influence on insulin-like growth factor-1 (IGF-1) levels. IGF-1 is a hormone that manages the effects of growth hormone in the body and is essential for promoting cognitive abilities.

Because aerobic and resistance exercises elicit different neurophysiological changes, studies have indicated that combining both modalities can enhance exercise-induced neuroplasticity to a greater extent than either modality alone.

For example, one study compared the effects of combined aerobic and strength training, aerobic exercise alone, and no exercise on cognitive function among dementia patients. After nine weeks, the combined exercise regimen yielded the most pronounced results across cognitive domains. Also, the observed gains in both motor and cognitive areas regressed towards baseline levels more than two months post-intervention, meaning it is essential to exercise regularly to sustain its neurological benefits.

Regarding the type of aerobic exercise most effective for AD prevention, Dr. Khemani recommends incorporating sprint intervals into our workouts. “We encourage our patients to engage in moderate-intensity exercises incorporating some high-intensity interval training, if possible, as these activities have been shown to be more impactful for Alzheimer’s prevention than light exercise alone,” she says.

 

https://longevity.stanford.edu/lifestyle/2024/05/28/how-exercise-reduces-risk-of-alzheimers-disease/

New Alzheimer's Medication: FDA approves treatment for adults with Alzheimer’s disease

The U.S. Food and Drug Administration has approved Kisunla (donanemab-azbt) injection for the treatment of Alzheimer’s disease. Treatment with Kisunla should be initiated in patients with mild cognitive impairment or mild dementia stage of disease, the population in which treatment was studied in the clinical trials…

The Dangers of Urinary Tract Infections for older adults with Dementia: What you need to know

Urinary tract infections (UTIs) are a significant health concern, especially for older adults and individuals with dementia. These infections can cause changes in mental status, such as increased confusion, agitation, and lethargy. Often, UTIs in those with dementia go undetected due to their inability to report symptoms or the infection being asymptomatic. This can lead to hospitalization, which we strive to prevent through education and awareness.